A Partnership between the Epilepsy Foundation & The Cameron Boyce Foundation
For media inquiries, please contact Kasey Kitchen.
About Cameron Boyce
Cameron Boyce was a successful actor known for Disney’s “Jessie,” as well as feature films such as “Descendants,” “Mirrors,” opposite Kiefer Sutherland, “Eagle Eye,” and starred opposite Adam Sandler in the hit films “Grown Ups,” and “Grown Ups 2.” He currently can be seen on HBO’s Mrs. Fletcher. Aside from his work on camera, Cameron was a tremendous humanitarian, who made it his mission to use his platform and resources to give back to others in need. Cameron passed away on July 6, 2019 from SUDEP. He was 20 years old.
Quick Facts & Stats:
  • SUDEP is the sudden, unexpected death of someone with epilepsy, who was otherwise healthy.
  • In SUDEP cases, no other cause of death is found when an autopsy is done.
  • Each year, about 1 in 1,000 people with epilepsy die from SUDEP.
  • This is the leading cause of death in people with uncontrolled seizures.
  • The person with epilepsy is often found dead in bed and doesn't appear to have had a convulsive seizure.
  • Over one-third of the time, there is a witnessed seizure or signs of a recent seizure close to the time of death.
  • No one is sure about the cause of death in SUDEP and it may differ between cases.
  • Epilepsy is the fourth most common neurological disorder and affects people of all ages.
  • Epilepsy means the same thing as "seizure disorders."
  • Epilepsy is characterized by unpredictable seizures and can cause other health problems.
  • Epilepsy is a spectrum condition with a wide range of seizure types and control varying from person-to-person.
  • Public misunderstandings of epilepsy cause challenges that are often worse than the seizures.
  • 65 MILLION: Number of people around the world who have epilepsy.
  • 3.4 MILLION: Number of people in the United States who have epilepsy.
  • 470,000: Number of children in the United States who have epilepsy.
  • 1 IN 26 people in the United States will develop epilepsy at some point in their lifetime.
  • 150,000: Number of new cases of epilepsy in the United States each year
The Epilepsy Foundation® connects people to treatment, support and resources; leads advocacy efforts; funds innovative research and the training of specialists; and educates the public about epilepsy and seizure first aid. For more than five decades, the Epilepsy Foundation has shone a light on epilepsy to promote awareness and understanding, and to advocate for laws that matter to people with epilepsy, while also funding $68.7 million for epilepsy research and supporting 3,091 epilepsy investigators and specialists in their early careers. Saving lives by increasing awareness and education about the risks of SUDEP is core to our mission.
The  SUDEP Institute is a program within the Epilepsy Foundation established to prevent Sudden Unexpected Death in Epilepsy (SUDEP). The SUDEP Institute empowers  people living with epilepsy and their caregivers with information and education about SUDEP, drives and supports research, and offers bereavement support services for those affected by a loss from epilepsy. It is critical that those living with epilepsy and their families understand their risk for SUDEP and the steps to take to prevent it and obtain seizure control.
The Cameron Boyce Foundation was established in July of 2019, and provides young people creative outlets to help change the world, honoring Cameron’s legacy by supporting the causes important to him: Ending gun violence, and the global water crisis.
Given the cause of Cameron’s passing being SUDEP (Sudden Unexpected Death in Epilepsy) a third component to the foundation’s focus is Epilepsy. Cameron was an extraordinary individual, whose kindness and philanthropy will live on through those who knew and loved him.
The foundation created in his honor is just as multi-faceted as he was, and will strive to put forth every effort to use the best resources possible to help others, and make the world a better place.
“We all go… what you leave should be bigger than you.” - Cameron Boyce, 2018
- Imagery of Cameron Boyce is credited to Ben Cope Photography